Hirschsprungs Family Connections

Hirschsprungs Family Connections

We are a small charity set up to connect families who love a child with Hirschsprungs Disease (HD).

 

We are based out of Southampton and work closely with Southampton Children's Hospital where all the children are treated.

 

Our Aims are to:

- Provide support for families who live with HD
- Organise family get togethers for families of people who live with HD
- Fund for medical supplies or equipment 
- Provide support to the wards where children are treated 
- Financially help families during hospital stays 
- Provide an online presence for families of children with HD. 
- Promote awareness of HD and awareness of late diagnosis 
- Give advice to and signpost families to organisations where possible
- Networking with other charities